Six years ago, life took an unexpected turn for Elisa.
A routine visit to the optician revealed something deeply concerning—her vision was deteriorating far too quickly. This discovery set off a whirlwind of medical appointments, beginning at the Royal Berkshire Hospital and culminating in specialised tests at Oxford University Hospital.
It was there that genetic specialists uncovered a rare condition causing Elisa’s mitochondrial genes to fail. While the exact cause remains unknown, it is suspected to be a spontaneous genetic mutation. The condition not only impaired her eyesight but also brought additional challenges, including diabetes, hearing loss, kidney disease, and severe muscle weakness. Participating in genetic research provided a sense of purpose, but answers remained elusive. Life, as Elisa had known it, was slipping away, forcing her to confront a daunting new reality.
Before her sight loss, Elisa was a cook, thriving in the fast-paced, precision-driven environment of the kitchen. However, her condition gradually made everyday tasks in her job impossible.
The physical toll worsened as weakened muscles and relentless exhaustion made tasks like lifting trays impossible. Compounding health issues added to the strain, and ultimately, Elisa had no choice but to leave a career she loved. The transition from being healthy and independent to managing multiple disabilities was devastating and humbling.
Discovering Berkshire Vision
A consultation at the Royal Berkshire Hospital led Elisa to a session with an RNIB counsellor, who then referred her to Berkshire Vision. Initially sceptical, she assumed our support would be polite yet procedural. But when Elisa met our Employability Officer, Jenna, everything changed.
Jenna’s genuine care and commitment became a lifeline. She checked in regularly, provided consistent encouragement, and even visited Elisa’s workplace to fully understand her struggles. Elisa quickly realised she wasn’t alone on this journey.
The Path Back to Work
Jenna began by meeting with Elisa to understand the full scope of her sight loss, challenges, and aspirations. Recognising her potential, Jenna invited her to a workshop on legal rights and disabilities, empowering Elisa with knowledge and confidence. Together, they worked on job applications, with Jenna offering invaluable guidance and encouragement at every step.
Jenna also introduced Elisa to the Fedcap program and supported her throughout. This structured program, combined with Jenna’s ongoing support, helped Elisa rebuild her confidence.
Eventually, Elisa’s hard work paid off, and she secured a job. While the role was different from her previous career, it offered her a renewed sense of purpose. Adjusting to work as a disabled person required Elisa to rethink her identity and focus on her abilities rather than her limitations. She took immense pride in excelling at tasks like cleaning tables and washing dishes, finding fulfilment in doing these roles to the best of her ability.
A Supportive Workplace
Elisa’s new manager demonstrated outstanding workplace inclusivity. Before her first day, the manager privately discussed Elisa’s challenges and needs, ensuring the right accommodations were in place. This open and understanding approach created an environment where Elisa felt valued and supported.
Through Berkshire Vision, Elisa found more than practical assistance, she found herself again. Berkshire Vision’s support helped her overcome self-doubt and embrace life as it is now. Elisa rediscovered joy in the present, focusing on what she could achieve rather than dwelling on what had been lost.
Today, Elisa’s outlook is one of acceptance and gratitude. Living in the moment and appreciating life’s small joys have become central to her philosophy. By focusing on possibilities rather than limitations, Elisa continues to move forward with hope and determination.
Elisa’s advice to others navigating similar challenges is both heartfelt and practical: